How to Get Respite Care for Autistic Children in North Carolina

Being the primary caregiver for a child with autism is a role defined by deep love and immense strength. But it can also be exhausting. You give your all every day, and finding a moment for yourself is essential for your well-being and the health of your entire family. 

Respite care is that lifeline to provide you with a necessary break while ensuring your child is in a safe and supportive environment. In North Carolina, you typically access this support by applying for the NC Innovations Waiver or 1915(i) services. Navigating the system to find that care can feel like another full-time job. This guide provides a clear and actionable path for families in North Carolina.

A Practical Roadmap to Respite Care in NC

Securing respite services involves three key steps, from identifying official resources to exploring funding. Think of it as a clear pathway, not a maze.

Step 1: Connect with State and Local Gateways

Your journey in North Carolina often begins with official agencies designed to guide you.

• Contact Your LME/MCO: Your Local Management Entity/Managed Care Organization (LME/MCO) is your primary contact for accessing public mental health and IDD services. You can find your local office through the NC Department of Health and Human Services directory. They will help you determine eligibility for various programs.
  
• Explore State Programs: The NC Lifespan Respite Program and the Autism Society of North Carolina (ASNC) are invaluable resources. ASNC can offer guidance on navigating services, while the Lifespan program may provide vouchers for care, typically accessed through a professional referral.
  

Step 2: Understand Your Funding Options

Cost should not be a barrier to getting the support you need. Several funding mechanisms exist to help cover respite services.

• Medicaid Waivers: The NC Innovations Waiver is a critical resource that can cover services for individuals with IDD, including respite care. Your LME/MCO can help you navigate the eligibility and application process.
• State and Non-Profit Support: Inquire about state-funded programs and organizations like Easterseals, which often provide respite services on a sliding fee scale based on income.

Step 3: Find and Vet the Right Provider

Once you have a plan, the final step is finding the right person or program. Ask your child’s care team, MCO, or local support groups for trusted referrals. When you connect with potential providers, conduct thorough interviews and reference checks to ensure they are a perfect fit for your child’s unique needs.

Considering Day Programs for Consistent Support

For many families, respite comes in the form of a structured routine. High-quality day programs for adults with autism offer consistent, reliable support that promotes skill development and community engagement. While often viewed as a next step for young adults, exploring a day program for autistic adults early can provide a seamless transition and continuous care. Finding the right day program creates a dependable schedule, giving you predictable blocks of time to recharge, work, or attend to other family needs.

Prioritizing your well-being is one of the most important things you can do for your child. Taking that break allows you to return to your role as a caregiver with renewed energy and focus.
Ready to explore what supportive living looks like for your family? Download our free Supported Living Guide to learn more about creating a plan for long-term success and independence.